Mediating factors in recovery from first-episode psychosis: Seen from users' perspectives in the TIPS 3 cohort
What makes a “good outcome” from first-episode psychosis? A recovery perspective - seen from service users'/therapists' views
To improve the course and outcome in first-episode psychosis, service users, their families and support system need valid knowledge on mechanisms facilitating recovery. Today such knowledge is insufficiently described leading to suboptimal treatment. The primary aim of this study is to explore and identify key items facilitating recovery.
Background: Psychotic disorders are among leading causes of the total burden of disease worldwide and cause severe human suffering. Meta-studies indicate that early detection and intervention more than doubles the chances of recovery in first-episode psychosis (FEP). However, less is known about how service users and therapists experience processes of recovery and factors facilitating such processes. In order to improve the course and outcome in first-episode psychosis (FEP), service users, their families and support system need valid and applicable evidence-based knowledge on mechanisms facilitating recovery. However, research in this field is still characterized by research designs that insufficiently identify key dimensions of such mechanisms, which probably have resulted in incomplete assessment of treatment needs and suboptimal treatment. The main challenge is to integrate user experience and perspectives, with the a-priori hypothesis driven approach which dominates the biomedical research literature. With this study, we aim to meet this challenge, providing a scientific answer to the growing need for research designs that integrates the dual perspectives and subjective experiences of both service users and therapists, thereby adding to our knowledge base on what constitutes recovery processes. To improve upon existing literature, this proposal includes user-involvement, well-defined samples, and a recognized definition of recovery, coupled with an innovative mixed-method research design. Such knowledge may lead to increased coherence between service users, families and their support system, as well as improved treatment. Primary objective: Explore and identify factors perceived by service users and therapists to facilitate recovery in first-episode psychosis. Methodology: In the frame of of user-involved research a mixed-method design following a “exploratory sequential” strategy will be used: Following a reflexive, thematic analysis approach two qualitative studies, one with recovered service users and one with therapists with experience in treating FEP will be performed to explore subjective experiences with and viewpoints on recovery processes in FEP and to inform and develop the quantitative, generalizable Delphi consensus method which will be applied to synthesize and rate recovery items derived from the qualitative studies and previous research. Using quotes derived from the qualitative studies as the basis for the quantitative methodology, we aim to preserve the “experience-near” language and user perspective in the quantitative part of the study. The project period was used to initiate the project. Planning, developing the interview guide, data collection, establishment of cooprative structures and preparing of the protocol was particularly focus during the project period. The project got PhD funding (Samarbeidsorganet).