DA factory
- Prosjektnummer
- HST1246-15
- Ansvarlig person
- Jürgen Kasper
- Institusjon
- Universitetssykehuset Nord-Norge
- Prosjektkategori
- inkubatorstøtte
- Helsekategori
- Generic health relevance
- Forskningsaktivitet
- 8. Health Services
Gjennom flere evalueringer og møter har det blitt innhentet synspunkter og endringsforslag fra helsepersonell som har gjennomført ulike moduler.
Brukerne er både pasienter og helsepersonell. Forskningen som inkluderer forskningsbasert implementering foregår i samarbeid med Helse Sør-Øst. Alle implementeringsteg drøftes og valideres i samarbeid med både pasientbrukerrådet og representanter fra spesialisthelsetjenesten, såkalte samvalgsambassadører som delta i train the trainer kurs og er med i utvikling, evaluerin og revidering av kursmodulene. Brukerne har tilgang til plattformen samvalg.no som administerer og deler alle materialer. De har også mulighet å påvirker forskning og utvikling.
Brukere har deltatt i utviklingen
deltok i filmproduksjon. brukerpanel for klar for samvalg har gjennom flere møter gitt innspill til det pågående arebidet
Brukerrepresentanter er bestandig med i utvikling. Brukerrepresentanter er både pasienter og helsepersonell som er mottaker av våre opplæringskurs .De kan aktivt påvirke..
Brukermedvirkning er sentralt tema i prosjektet. Ingenting i prosjektet skjer uten å prioritere brukermedvirkning. Prosjektet skal fremme den mest rigorøse og konsekvente måten på brukermedvirkning, samvalg, hvor brukeren blir støttet i å ta informerte valg om egen helse: samvalg er primær utfallparameter i alle våre evalueringstudier. Brukerne i vår sammenheng er helsepersonell og pasienter. I det siste året ble brukerne involvert i evaluering av "klar for samvalg" opplæringsmodulen gejnnom spørreskjema, fokusgruppe, deltakelse, tilbakemeldinger. Økning av brukermedvirkning i sin rigorøs forståelse er målsetting av prosjektet. Det ble også utviklet og gjennomført en train the trainer program som gir mulighet for bruk klar for samvalg av mange helsepersonel i Norge. Slik søger vi for at helsepersonell i hle landet er delaktig vår kunnskap.
Determinants of practice for providing decision coaching to facilitate informed values-based decision-making: protocol for a mixed-methods systematic review.
BMJ Open 2023 Nov 15;13(11):e071478. Epub 2023 nov 15
PMID: 37968011
Understanding how and under what circumstances decision coaching works for people making healthcare decisions: a realist review.
BMC Med Inform Decis Mak 2022 Oct 08;22(1):265. Epub 2022 okt 8
PMID: 36209086
Ready for SDM- evaluation of an interprofessional training module in shared decision making - A cluster randomized trial.
Patient Educ Couns 2022 Jul;105(7):2307. Epub 2022 mar 17
PMID: 35365369 - Inngår i doktorgradsavhandlingen
New status report from Norway: Implementation of patient involvement in Norwegian health care.
Z Evid Fortbild Qual Gesundhwes 2022 Jun;171():105. Epub 2022 mai 23
PMID: 35618624 - Inngår i doktorgradsavhandlingen
Development and evaluation of evidence-based patient information handbooks about multiple sclerosis immunotherapies.
Mult Scler Relat Disord 2022 Apr;60():103728. Epub 2022 mar 10
PMID: 35290898
Decision-making about corticosteroids in relapses of multiple sclerosis - development of a questionnaire based on the theory of planned behaviour.
Mult Scler Relat Disord 2021 Oct;55():103182. Epub 2021 jul 31
PMID: 34358850
Interventions to Improve Trainers' Learning and Behaviors for Educating Health Care Professionals Using Train-the-Trainer Method: A Systematic Review and Meta-analysis.
J Contin Educ Health Prof 2021 07 01;41(3):202-209.
PMID: 34292260
Ready for SDM: evaluating a train-the-trainer program to facilitate implementation of SDM training in Norway.
BMC Med Inform Decis Mak 2021 04 30;21(1):140. Epub 2021 apr 30
PMID: 33931046 - Inngår i doktorgradsavhandlingen
Decision coaching for people making healthcare decisions.
Cochrane Database Syst Rev 2021 11 08;11():CD013385. Epub 2021 nov 8
PMID: 34749427
Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design.
Pilot Feasibility Stud 2021 Jan 07;7(1):16. Epub 2021 jan 7
PMID: 33413658
Building ground for didactics in a patient decision aid for hip osteoarthritis. Exploring patient-related barriers and facilitators towards shared decision-making.
Patient Educ Couns 2020 07;103(7):1343-1350. Epub 2020 feb 3
PMID: 32061434
Ready for shared decision making: Pretesting a training module for health professionals on sharing decisions with their patients.
J Eval Clin Pract 2020 Apr;26(2):610-621. Epub 2020 mar 1
PMID: 32114700
Efficacy of a training programme to support the application of the guideline evidence-based health information: study protocol of a randomised controlled trial.
Trials 2020 May 25;21(1):425. Epub 2020 mai 25
PMID: 32450901
MAPPinfo, mapping quality of health information: study protocol for a validation study of an assessment instrument.
BMJ Open 2020 11 03;10(11):e040572. Epub 2020 nov 3
PMID: 33148762
Patient autonomy in dentistry: demonstrating the role for shared decision making.
BMC Med Inform Decis Mak 2020 12 02;20(1):318. Epub 2020 des 2
PMID: 33267847
Patient Preferred and Perceived Control in Dental Care Decision Making.
JDR Clin Trans Res 2019 Apr;4(2):151-159. Epub 2018 nov 14
PMID: 30931704
Shared decision-making in older patients with colorectal or pancreatic cancer: Determinants of patients' and observers' perceptions.
Patient Educ Couns 2018 10;101(10):1767-1774. Epub 2018 jun 13
PMID: 29933924
Numeracy of multiple sclerosis patients: A comparison of patients from the PERCEPT study to a German probabilistic sample.
Patient Educ Couns 2018 Jan;101(1):74-78. Epub 2017 jul 17
PMID: 28764895
Status report from Norway: Implementation of patient involvement in Norwegian health care.
Z Evid Fortbild Qual Gesundhwes 2017 Jun;123-124():75-80. Epub 2017 mai 22
PMID: 28546052
Training doctors briefly and in situ to involve their patients in making medical decisions-Preliminary testing of a newly developed module.
Health Expect 2017 Dec;20(6):1254-1263. Epub 2017 mai 18
PMID: 28521082
Validation of the Norwegian version of MAPPIN'SDM, an observation-based instrument to measure shared decision-making in clinical encounters.
Patient Educ Couns 2017 Mar;100(3):534-541. Epub 2016 okt 26
PMID: 28029570
The development and feasibility of a personal health-optimization system for people with bipolar disorder.
BMC Med Inform Decis Mak 2017 Jul 10;17(1):102. Epub 2017 jul 10
PMID: 28693482
Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) - Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation.
Int J Nurs Stud 2017 Aug 26. Epub 2017 aug 26
PMID: 28982479
Patient education programme on immunotherapy in multiple sclerosis (PEPIMS): a controlled rater-blinded study.
Clin Rehabil 2017 Feb;31(2):250-261. Epub 2016 jul 10
PMID: 27072153
A new graphical format to communicate treatment effects to patients-A web-based randomized controlled trial.
Health Expect 2016 Dec 16. Epub 2016 des 16
PMID: 27981688
Subjective and objective knowledge and decisional role preferences in cerebrovascular patients compared to controls.
Patient Prefer Adherence 2016;10():1453-60. Epub 2016 aug 2
PMID: 27536077
The Foundation in Evidence of Medical and Dental Telephone Consultations.
Dtsch Arztebl Int 2016 Jun 06;113(22-23):389-95.
PMID: 27374375
Mapping search terms to review goals is essential.
BMJ Qual Saf 2016 Feb;25(2):130. Epub 2015 nov 30
PMID: 26621914
Informed shared decision-making programme on the prevention of myocardial infarction in type 2 diabetes: a randomised controlled trial.
BMJ Open 2015;5(11):e009116. Epub 2015 nov 13
PMID: 26567256
Risk Knowledge in Relapsing Multiple Sclerosis (RIKNO 1.0)--Development of an Outcome Instrument for Educational Interventions.
PLoS One 2015;10(10):e0138364. Epub 2015 okt 2
PMID: 26430887
Evaluator-blinded trial evaluating nurse-led immunotherapy DEcision Coaching In persons with relapsing-remitting Multiple Sclerosis (DECIMS) and accompanying process evaluation: study protocol for a cluster randomised controlled trial.
Trials 2015;16():106. Epub 2015 mar 21
PMID: 25872529
Opplæring i samvalg til sykepleiere i en master- og videreutdanning
Sykepleien Forskning. 2022; 17(90284):e-90284. DOI: 10.4220
Samvalgsveiledning kan gi pasienter bedre helsekunnskap
Sykepleien Forskning 2022 17 (88047) (e-88047)DOI: 10.4220/Sykepleienf.2022.88047
Training in shared decision-making for registered nurses taking a master’s degree and/or a postgraduate programme
Sykepleien Forskning 2022;17(90284):e-90284. https://doi.org/10.4220/Sykepleienf.2022.90284en
Response on letter commenting on “New status report from Norway: Implementation of patient involvement in Norwegian health care.”
ZEFQ 171 (2022) 105–112
Hvordan får vi eldre pasienter til å være med og velge behandling?
Sykepleien. 2020
Sykepleiere trenger kompetanse i samvalg
Sykepleien. 2020
Oversiktsartikel: Samvalg
Michael 2020; 17: Supplement 24; 127–43
Samvalg – hvilken rolle har sykepleieren?
Sykepleien 2020108 (82530) (e-82530) DOI: 10.4220
Impact of a multimedia website with patient experiences of multiple sclerosis (PExMS) on immunotherapy decision-making: study protocol for a pilot randomised controlled trial in a mixed-methods design
BMJopen (in review)
Decision coaching for people making healthcare decisions
Cochrane Database of Systematic Reviews 2019, Issue 7. Art. No.: CD013385
Building ground for didactics in a patient decision aid for hip osteoarthritis. Exploring patient-related barriers and facilitators towards shared decision-making
PEC (in press)
Ready to SDM - pretesting a training module for health professional in sharing decisions with their patients
Journal of evaluation in clinical Practice (in press)
Patient preferred and perceived control in dental care decision-making
JDR Journal of dentistry research
Patient education programme on disease modifying therapy in multiple sclerosis (PEPIMS) – a controlled rater-blinded study
Clin Rehabil. 2016 Apr 12,Epub ahead of print
Samvalgsveiledning gitt av sykepleiere for å involvere pasienter med multippel sklerose i beslutninger om immunterapi.
BestPractice Psykiatri / Nevrologi Sept. 2016; 14-17.
Clarifying risk figures using a new presentation format – a web-based randomized controlled trial
submitted to HEX
- Jürgen Kasper Prosjektleder
- Simone Maria Kienlin Doktorgradsstipendiat
- Jürgen Kasper Prosjektleder
- Kari Nytrøen Prosjektdeltaker
- Espen Andreas Brembo Prosjektdeltaker
- Eirik Hugaas Ofstad Postdoktorstipendiat
- Simone Kienlin Prosjektdeltaker
- Anne Regine Lager Prosjektdeltaker
- Markus Rumpsfeld Prosjektdeltaker
eRapport er utarbeidet av Sølvi Lerfald og Reidar Thorstensen, Regionalt kompetansesenter for klinisk forskning, Helse Vest RHF, og videreutvikles av de fire RHF-ene i fellesskap, med støtte fra Helse Vest IKT
Alle henvendelser rettes til eRapport, Helse Nord